The illness I live with is: Type 1 Diabetes. (Also, a "lupus" like Autoimmune Disease that causes joint pain, rash, and problems with being in the sunshine)
I was diagnosed with it on: I have had problems since I was a kid. My mom would take me to the doctor and they would say it's hormones or other crap. In February 1997, I was at the doctors office and despite other tests being overlooked that would have confirmed it I had a BG of almost 500.
I've had symptoms since: I had a lot of sick days as a kid, but it got worse when I was a teenager. When I was younger I was thirsty I would drink from the ditch in the field where we liked to play. My mom would tell the doctors but they said it was normal. I also had horrid problems with my eyes. My mom would take me every 6 months to a specialist who told me I would probably be blind by the time I was 25. (It was nerve damage)
The biggest adjustment I’ve had to make is: Making it a lifestyle. Knowing that its always there, and I can't ignore it.
Most people assume: There is nothing wrong with me, or that I got my D from eating too much sugar :(
The hardest part about mornings are: Getting up. I usually don't feel well in the morning. It takes a while to get moving.
My favorite medical TV show is: House. Mostly because I work in the medical field and I feel smart when I call someone out on a mistake.... Just saying....
A gadget I couldn't live without is: I love my Dexcom. I hate that my insurance won't cover it. My pump is amazing, but again it is very expensive.
The hardest part about nights are: Wondering if I might be one of those "Dead in Bed" cases! I think every younger person with T1 thinks about it. Plus, I am not a fan of 3am BG checks, but it has saved my bacon on many a nights. (mmmm Bacon!)
I take ___ pills & ____ vitamins: 5 Pills, 2 Vitamins, and insulin.
Regarding alternative treatments I: I get really upset when people give me lame advice about cinnamon (which I allergic to) or other crap about fad diets. I hate that there is no education about the 2 diseases. Everyone with D suffers regardless of what kind they have. There are very thin people with T2 D and overweight people with T1D.
If I had to choose between an invisible illness or visible I would choose: Invisible. I like that a lot of people don't know I have health problems. I hate when people say "She did that with D!" Although I appreciate the complement, I can usually work circles around some of my co-workers. I have REALLY bad days, but it doesn't stop me. People with D can do what any other person can do, it just might not be in the same way.
People would be surprised to know: Sometimes D just makes me sad. I don't like to, and rarely do play the victim card but sometimes, it really isn't fair. I worry all the time about loosing my Dad who is also a T1 D. I get scared because of the damage that D has done to my body despite A1c levels 6% and below.
The hardest thing to accept has been: Like I mentioned above, it never leaves your mind. You can't shove it under a carpet or not worry about it. It's ALWAYS there.
Something I never thought I could do with my illness:
Hmmmmm.... I have always believed that I could do anything. I have had other health problems. I have had Chemo treatments and almost lost my hand. I ended up having Hysterectomy last year. So really the only think I can't do is bear my own children. If I want something I wouldn't let illness stop me.
The commercials about my illness: Grrrrrr...... There is NO EDUCATION about T1 D!!!! They have all these embarrassing commercials trying to scare "fat people" into loosing weight! ( I am fat, and I think these commercials are SO MEAN!) They aren't even correctly portraying T2 Diabetics, let alone, ANY diabetic! Plus, don't get me started on those annoying test your blood sugar commercials! Uggg
My favorite motto, scripture, quote that gets me through tough times is: * We have no control over the hand we are dealt, it's how we play that matters!* We make a living by what we get, we make a life by what we give.
When someone is diagnosed I’d like to tell them:
You Can Do This!
It becomes a part of who you are,
and you are wonderful!!!!!!!
Something that has surprised me about living with an illness is: That you really can adapt. You are not your disease. You can still do what you want to do. There are people that will kindly show you they way if you just ask. You are not alone. You can give so much to others because you can relate to them. You meet amazing people, and have opportunity to give.
28. The nicest thing someone did for me when he wasn’t feeling well was: Just be there. It's amazing what a quick note can do! My family, friends, and work is amazing! I was so worried I may loose my job when I have been sick, but I was always covered and missed by my wonderful co-workers and "Grandfriends" at the retirement community I work at!
I’m involved with Invisible Illness Week because:
Everyone is fighting their own battle.
The fact that you read this list makes me feel: Warm and fuzzy because I know you care! :D
Sorry about the messed up formatting it wants to go to right I guess :)